BHF Data Science Centre Kidney Data Science Catalyst – Prioritisation Exercise
If you’re a researcher, healthcare professional, a nephrologist, patient, or a member of the public – we want to know what questions you think are important in kidney disease and cardiovascular disease research! The British Heart Foundation Data Science Centre Kidney Catalyst, in partnership with Kidney Research UK, is carrying out a prioritisation exercise (using a modified Delphi approach) to identify and obtain agreement on the most important research questions related to kidney disease.
This approach will help us to identify and prioritise the key areas in kidney and cardiovascular disease research, with input from a wide range of people. The responses from this survey will be grouped into themes, which will be presented at a workshop in the Autumn. This workshop will allow researchers, clinicians and public contributors to discuss which areas are the most important to focus on. This will inform the work that the Kidney Catalyst will carry out over the next three years. Please complete our short, anonymous survey here.
The closing date is Friday 6th September 2024.
What do we mean by Kidney Data Science Catalyst?
Funded by Kidney Research UK in partnership with the BHF, the overarching aim of the Kidney Data Catalyst is to accelerate research at the interface of kidney and cardiovascular disease by facilitating data-led research.
Why is kidney-related data important for cardiovascular disease research?
Chronic kidney disease (CKD) is common, affecting 1in 10 people. CKD is a strong risk factor for the development of cardiovascular disease, which is the leading cause of adverse outcomes, including death, in people with CKD. The mechanisms to prevent and treat CKD and cardiovascular disease are intricately connected; more high quality data on these connections will be of great value to policymakers, healthcare providers, researchers and industry partners.
What are we doing?
The catalyst will enable researchers to securely access, link and analyse existing UK health data, speeding up the search for better kidney and cardiovascular disease prevention, treatments and care.
We aim to achieve this by:
- Working with stakeholders (including patients, research, clinical professional societies, industry) with an interest in and expertise across the spectrum of health relevant data types
- Identifying research priorities for large-scale, data-enabled kidney research
- Understanding and addressing the infrastructure and analytics challenges that need to be overcome to enable linkage across health data and their analyses at UK-wide scale, to improve people’s kidney and cardiovascular health and care.
Areas of work
Find out more about our data-led research.
CVD-COVID-UK / COVID-IMPACT
One of seven National Flagship Projects approved by the NIHR-BHF Cardiovascular Partnership, linking population healthcare datasets across the UK to understand the relationship between COVID-19 and cardiovascular diseases.
Learn more…
Imaging
Better use of unstructured data: addressing the challenges of accessing, improving and using unstructured data, for example from cardiac and brain imaging, medical free text and electrocardiograms.
Smartphones and Wearables
Exploring how data from apps and wearables, linked to other health datasets, can inform trajectories of cardiovascular health and disease.
Defining Disease
Developing methods to define cardiovascular health and disease in computable form through a collaborative network of expertise that provides a world-leading, open, cardiovascular phenotype library of tools and protocols.
Clinical Trials
Developing platforms for efficient, cost-effective trials, using routine health data to recruit and follow patients with cardiovascular conditions.
Enhancing Cohorts
Facilitating the linkage of large, ‘omics-rich’ cohorts to electronic health records to better understand the causes of cardiovascular diseases.
Diabetes Data Science Catalyst
This exciting partnership between the BHF Data Science Centre, Diabetes UK and HDR UK aims to develop improvements in our understanding of the link between cardiovascular diseases and diabetes.
Stroke Data Science Catalyst
This partnership between the BHF Data Science Centre, HDR UK and the Stroke Association will enable researchers to securely access, link and analyse existing UK health data, speeding up the search for better stroke prevention, treatments and care.