Our PPIE Vision
Our vision is to work with patients and the public to co-produce quality research that is relevant to patients affected by heart and circulatory disease, and the public as a whole. Involving patients and the public in our work ensures that research carried out using people's data is transparent, trustworthy and acceptable.
What do we do?
Public Advisory Group
Our Public Advisory Group is made up of members of the public who have lived experience of heart and circulatory diseases, stroke and/or diabetes, and have an interest in our areas of work.
Read moreGet involved
Start a conversation with us to find out more about how to join our group or attend some of our PPIE events.
Get in touch
Outputs and impact
Our public contributors and involvement activities are crucial in ensuring that our work delivers on meaningful outputs.
Read moreContributors
Alan Keys
Public Member
Alan is a member of the BHF Data Science Centre Public Advisory Group and contributes to the CVD-COVID-UK/IMPACT Approvals & Oversight Board.
Anwar Gariban
Public Member
Anwar is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Smartphone and Wearables and Cohorts areas of work.
Frank Harris
Public Member
Frank is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Stroke Data Science Catalyst.
Helen Grice
Public Member
Helen is a member of the BHF Data Science Centre Public Advisory Group and contributes the Smartphone and Wearables area of work.
John Walsh OBE
Public Member
John is a member of the BHF Data Science Centre Public Advisory Group and contributes to the CVD-COVID-UK Approvals & Oversight Board and to Smartphone and Wearables.
Julian Meldrum
Public Member
Julian is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Imaging and Cohorts areas of work.
Kay Murray
Public Member
Kay is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Diabetes Data Science Catalyst.
Laurence Humphrey-Davies
Public Member
Laurence is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Smartphone and Wearables area of work.
Margaret Rogers
Public Member
Margaret is a member of the BHF Data Science Centre Public Advisory Group and contributes to the CVD-COVID-UK/COVID-IMPACT Approvals and Oversight Board.
Matthew Tosh
Public Member
Matthew is a member of the BHF Data Science Centre Public Advisory Group and contributes to the BHF Data Science Centre’s Oversight Committee.
Mike Molete
Public Member
Mike is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Diabetes Data Science Catalyst and Cohorts area of work.
Mustapha Koriba
Public Member
Mustapha is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Imaging area of work.
Nicola Monk
Public Member
Nicola is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Smartphone and Wearables area of work.
Peter Rogers
Public Member
Peter is a member of the BHF Data Science Centre Public Advisory Group and contributes to the Diabetes Data Science Catalyst.
Phyllis Windsor
Public Member
Phyllis a member of the BHF Data Science Centre Public Advisory Group and contributes to the Stroke Data Science Catalyst.
Poh-choo Pang
Public member
Poh-choo is a member of the BHF Data Science Centre Public Advisory Group and contributes to our Cohorts area of work.
Suzannah Power
Public Member
Suzannah is a member of the BHF Data Science Centre Public Advisory Group and contributes to the CVD-COVID UK/COVID-IMPACT Approvals and Oversight Board.
Resources
We have curated a list of some great PPIE resources below.
Health Data Research UK Voices
Voices is a network of people interested in influencing and shaping the work of HDR UK, our founding partner and national institute for health data research. If you join, you can get involved in any of the opportunities we have available.
HDR UK – Involve to Improve
Learn about the different areas of work at Health Data Research UK and how we involve patients and the public to shape and influence our work.
What is Patient and Public Involvement and Engagement (PPIE)?
Working with patients and the public to shape our research, and engage with it, is known as Patient and Public Involvement and Engagement, or PPIE for short.
How is my health data kept secure and what does data linkage mean?
Research Data Scotland share short video animations which explain some of the ways patient data is kept safe and how this data is used for research.
Heart Matters Magazine
BHF magazine for all things related to the heart.
Data Jargon Buster
Are you keen to get started in the exciting world of data, but find the terminology difficult to digest? Don’t stress, we have the perfect blog to introduce you to all the relevant jargon!
How is patient data used?
Find out how patient data is used, who can access patient data, how decisions are made about patient data and how it is kept safe.
Easy Read: Research Survey: Resources for involving the public in data research
We used a survey to find out how people involved in research can work together better.
National Institute for Health and Care Research (NIHR)
An interactive course for new and experienced reviewers of health and social care research, which has been produced by a team of public reviewers and patient and public involvement professionals with the NIHR.
I want to take part in a research study
Find out more about different research studies. How to take part in a research study and why participating in a research study might be right for you.
Get involved
Want to find out more about PPIE? Get in touch with us.