Our PPIE Vision
Our vision is to work with patients and the public to co-produce quality research that is relevant to patients affected by heart and circulatory disease, and the public as a whole. Involving patients and the public in our work ensures that research carried out using people's data is transparent, trustworthy and acceptable.
What do we do?
Public Advisory Group
Our Public Advisory Group is made up of members of the public who have lived experience of heart and circulatory diseases or diabetes, and have an interest in our areas of work.Read more
Start a conversation with us to find out more about how to join our group or attend some of our PPIE events.Get in touch
Outputs and impact
Our public contributors and involvement activities are crucial in ensuring that our work delivers on meaningful outputs.Read more
I am a public and patient contributor for the Centre and have been involved with the wearables programme on patient advisory steering group since May 2021.
John Walsh OBE
I am a chartered engineer, now retired, who survived a heart attack in 1995. The event and the subsequent treatment gave me an interest in cardiology.
Retiring in 2011, I served on a BHF patient data advisory panel, Clinical Studies Committee and now sit on the BHF/CRC Oversight Board and BHF DSC Oversight Committee.
I am passionate about involving patients in research. I have extensive experience working with multiple organisations and research teams across the UK.
I have joined the BHF Data Science Centre as a public contributor to the Approvals and Oversight Board for CVD-COVID-UK/COVID-IMPACT.
I am currently a public contributor member on the BHF Data Science Centre CVD-COVID UK/COVID-IMPACT Approvals and Oversight Board.
I am a Voluntary Partnerships Manager for NHS England and a specialist in the involvement of volunteers in the work of the NHS and in children’s charities.
I have been a Patient’s Championing and a Carers’ Ambassador for over 10 years. I am a fervent advocate of Ethnicity, Diversity and Inclusion.
I joined the BHF Data science Centre two years ago and contribute to the personal monitoring and enhancing cohorts thematic areas.
We have curated a list of some great PPIE resources below.
Health Data Research UK Voices
Voices is a network of people interested in influencing and shaping the work of HDR UK, our founding partner and national institute for health data research. If you join, you can get involved in any of the opportunities we have available.
HDR UK – Involve to Improve
Learn about the different areas of work at Health Data Research UK and how we involve patients and the public to shape and influence our work.
What is Patient and Public Involvement and Engagement (PPIE)?
Working with patients and the public to shape our research, and engage with it, is known as Patient and Public Involvement and Engagement, or PPIE for short.
Heart Matters Magazine
BHF magazine for all things related to the heart.
Resource Survey for Public Involvement and Engagement Activities in Data Driven Research
The Public Engagement in Data Research Initiative (PEDRI) has completed a resource survey about public involvement and engagement in data research and statistics. The survey aimed to identify the resource needs of public, researchers, and public engagement professionals to effectively complete their roles.
Easy Read: Research Survey: Resources for involving the public in data research
We used a survey to find out how people involved in research can work together better.
National Institute for Health and Care Research (NIHR)
An interactive course for new and experienced reviewers of health and social care research, which has been produced by a team of public reviewers and patient and public involvement professionals with the NIHR.
Data Jargon Buster
Are you keen to get started in the exciting world of data, but find the terminology difficult to digest? Don’t stress, we have the perfect blog to introduce you to all the relevant jargon!
I want to take part in a research study
Find out more about different research studies. How to take part in a research study and why participating in a research study might be right for you.
Want to find out more about PPIE? Get in touch with us.