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Resources for patients and the public

Getting involved with health data research is a great way to make a difference to future discoveries, treatments and diagnosis which can have a positive impact on patients living with heart and/or circulatory disease.

Here you will find a list of helpful information, videos and guides that simplify the world of health data research and support you to get involved.

Videos and animations

How is my health data kept secure?

Research Data Scotland share short video animations which explain some of the ways patient data is kept safe and how this data is used for research.

Visit their website HERE.

How can I find a research study to take part in?

Be Part of Research is an online service that helps members of the public understand what research is, what taking part might involve, as well as helping people find research studies and volunteer to take part.

Watch their video HERE.

Helpful information

I want to take part in a research study

Find out more about different research studies. How to take part in a research study and why participating in a research study might be right for you.

Visit National Institute of Health & Care Research HERE.

How is patient data used in research?

Find out how patient data is used, who can access patient data, how decisions are made about patient data and how it is kept safe.

Visit Understanding Patients Data HERE.

What is patient and public involvement and engagement (PPIE)?

Working with patients and the public to shape our research, and engage with it, is known as Patient and Public Involvement and Engagement, or PPIE for short.

Find out more HERE.

Health Data Research UK – Involve to improve

Learn about the different areas of work at Health Data Research UK and how we involve patients and the public to shape and influence our work.

Find out more HERE.

Heart Matters Magazine

British Heart Foundation magazine for all things related to heart health.

Find out more HERE.

Easy Read: Research Survey: Resources for involving the public in data research

PEDRI used a survey to find out how people involved in research can work together better.

Find out more HERE.

Guides

Data Jargon Buster

Are you keen to get started in the exciting world of data, but find the terminology difficult to understand?

Visit the website HERE.

National Institute for Health and Care Research (NIHR) – Interactive course

An interactive course for new and experienced reviewers of health and social care research, which has been produced by a team of public reviewers and patient and public involvement professionals with the NIHR.

Find out more HERE.