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Research Resources

Involving the public in your research

Involving patients and the public in health data research is crucial for ensuring that research is acceptable, transparent and relevant to people’s needs. Involving the public enhances your research, builds public trust and increases the public’s understanding of health data.

Here you will find a selection of resources we have collated which provide guidance and good practice on embedding patient and public involvement and engagement (PPIE) within your research. This includes the UK Standards for Public Involvement, how to write a plain English summary, training and how to contact our team with enquiries.

Guides

HDR UK’s guiding principles for public involvement

HDR UK developed these PPIE principles with patients, members of the public, staff members, members of their Public Advisory Board and other experts in the field.

Find out more here.

UK Standards for Public Involvement

Better public involvement for better health and social care research.

Find out more here.

A rough guide for public involvement

This Rough Guide was produced by the National Institute for Health and Care Research (NIHR).

Find out more here.

Guidance on Involving the Public in Health Data Research

This guidance document is for researchers involving the public in health data research.

Find out more here.

How to write a plain English summary

This guidance is for researchers writing plain English summaries, and board and panel members including public reviewers.

Find out more here.

Training

PPIE Training

An interactive course for new and experienced reviewers of health and social care research, which has been produced by a team of public reviewers and patient and public involvement professionals with the NIHR

Visit their website here.

HDR UK Futures: PPIE Training

A short course specific to PPIE in health data research.

Visit the website here.

Further support from the BHF Data Science Centre

Support for applying PPIE in your research

Are you interested in finding out more about PPIE and how you can apply this in your research?

We may be able to help, contact our PPIE team via bhfdsc@hdruk.ac.uk for more information.