Outputs and Impact

We work with patients and the public to co-produce quality research, build mechanisms which support transparency and trust and meaningfully involve a diverse group of people, including less represented groups affected by heart and circulatory conditions.

Find out how involving the patients and the public contributes to our project/Centre outputs and the impact they have as a result.

Our latest outputs and impact

Case Studies

Each case study is presented as a downloadable PDF. To download the PDF to your device, please click the image below.


 

 

PPIE across our Areas of Work

Smartphone and Wearables

  • Public contributors co-produced a public survey to help us understand what data members of the public would be willing to share through a smartphone and/or wearable.
  • In 2022, we hosted a public webinar to engage the public in questions around the logistics and ethics of using wearables to help detect heart conditions. A report of the webinar, including responses to the interactive Q&A session, reflections, and an overview of the work in this area can be read here

Imaging

  • Public contributors co-produced a public survey to gather priorities for cardiovascular research.
  • Public contributors co-presented a patient voice and cardiovascular research priorities webinar in February 2023

 

Diabetes Data Science Catalyst

  • Public contributors joined a call for funding panel and provided expertise. They scored applications and reviewed awardee progress reports to ensure the patient and public voice was represented.

CVD-COVID-UK/IMPACT Consortium

  • Public contributors provide advise and contribute to various projects to ensure PPIE is integral to the CVD-COVID-UK/COVID-IMPACT work.
  • They have contributed to the development of a ‘ways of working’ document to help guide researchers ensuring they consider PPIE.
  • Provided guidance on more than 50 CVD COVID-UK/COVID-IMPACT research projects, and counting.

Stroke Data Science Catalyst

  • Public contributors joined a call for funding panel and provided expertise when reviewing applications ensuring the patient and public perspective was considered.

Cohorts

  • Public contributors helped develop frequently asked questions designed for the public which will feature on a Trusted Research Environment (TRE) platform.

Writing Club/Communications

  • A public contributor wrote an opinion piece ‘I want to have an open and honest conversation about the strengths and limitations about data, and you can too.’ Read more here.
  • Contributed to an opinion piece in the British Medical Council Journal
  • Public contributors provided input and attended a user experience workshop during the launch of our brand new website in 2023.
  • Attended a workshop to develop new names for our areas of work, helping us ensure these names are understandable for the public.
  • Contributed and developed a public facing jargon buster.

Other involvement

  • Co-presented at an NIHR webinar discussing PPIE within intense data research.